I wanted to pass on a book recommendation from a friend of mine from a forum on the knitting and crochet site Ravelry. The book is called Life Disrupted, by Laurie Edwards, subtitled "Getting Real About Chronic Illness in Your Twenties and Thirties." It's got 16 5 star reviews on Amazon, too.
I got diagnosed in my 30s, but I am into my 40s now. I think it may be harder to be sick when you're younger because you have a different level of expectations. Your friends are going out at all hours partying, you are going through the trauma of dating, you don't know how to take care of yourself as much...
At this age (42) and with finally having a good diagnosis of Crohn's and some proper medication, I feel I am a lot more able to cope with having a chronic illness. It's a bit harder because I have small kids but as they get older and are able to do more things themselves, that's getting easier too. My boys are 6 and 7 now and they are getting a lot more independed. They can take their own showers, get dressed, get themselves snacks, and operate the TV and game systems. Woo hoo!
But if you're on the younger side of the scale you might get something out of this book. If you have read it let me know what you think - use the blog comment feature below.