My personal story as a person with Crohn's and some suggestions for products and information that may help provide some relief and raise your spirits. No-one is in this alone. This is not a site peddling cures or quackery. I am just a regular person sharing information and some shopping links for handy products.
In the month of Thanksgiving, a lot of people are talking about what they are thankful for. I thought I would see if I can apply a gratitude list to Crohn's. Well, not I'm not really thankfull I have Crohn's but if I really think about it I can see silver lining in the cloud.
1. It could be worse - my Crohn's is not as bad as a lot of other people's. I haven't had to have surgery and I can still work. I am ahead on the colon cancer screening and know I don't have any polyps.
2. I have a great husband who does lots of stuff for the kids and me. He lets me have quiet time, take naps, and be a complete lame-o when I am tired.
3. I can get the good medications. heh heh.
4. My gasgtroenterologist is totally nice and the best doctor EVER.
5. I can still eat broccoli, apples, low acid orange juice, and lots of yummy stuff. I don't have problems with gluten or dairy.
6. I have a great excuse for saying no to things I can't fit in my schedule. I am one of those people who have a hard time saying no, so its good to have a go-to answer so as not to over extend myself.
7. I am thankful for wet wipes and aloe tp.
8. I am so thankful for my kids. I read recently that women with Crohn's have a normal fertility rate. I actually also have PCOS and it took me a long time and some fertility help (metformin) to get pregnant the first time. Then when my first some was 6 months old I started trying again and got pregnant right away. The two boys are 17 months apart!
9. I have a great job.
10. I got my MacBook Pro fixed and now have my in bed blogging setup once again! (It just needed a new battery.) Thank you Macrobatix.
Having a chronic illness seems to go both ways - some days your experiences allow you to truly appreciate each day for the gift that it is. Having gone through so much pain and suffering sure makes you have a new appreciation for a good day when you feel just fine.
On the other hand there are those "woe is me" days when the chronic illness makes us feel bad, crabby, and really sorry for ourselves.
Crohn's Disease itself has a cyclical nature, going from good days to flare days. Up and down. People ask me "How's your Crohn's Disease going" and I don't know how to answer. Sometimes its fine and sometimes I am puking my guts out at 3:00 AM. I manage to work, take care of the kids and spouse, but sometimes there's not much energy left over for anything else. Its up and down.
Just like the up and down of the disease, you get ups and downs in your mood and outlook. Some days I feel like I have a special clue as to how precious life really is - and the "normals" (maybe people who are so healthy its disgusting!) just don't have a clue. Other days I am right there with the "woe is me" crowd laying in bed with my heating pad and making my husband take care of all life's details.
Do we have a choice of what our attitude is? Yes, partly we do have a choice and its up to each one of us to try to pick the grateful attitude instead of the woeful attitude. But remember, we are only human and bound to get down sometimes. Just remember even when life is at its worst, we have the people who love us and that is enough.