My personal story as a person with Crohn's and some suggestions for products and information that may help provide some relief and raise your spirits. No-one is in this alone. This is not a site peddling cures or quackery. I am just a regular person sharing information and some shopping links for handy products.
Here's a great way we all can help the CCFA raise money - super cute holiday cards drawn by kids with IBD. The "Kids for a Cause" card line were drawn by the kids at the CCFA's Camp Oasis this summer. They have cards for all sorts of holidays from Christmas, Hanukkah, Rosh Hashanah, Thanksgiving, New Years...
I LOVE this card with a Dove on it. It's listed under Rosh Hashanah (which is next Friday!) but I will use it for Hanukkah cards personally. Like Dove for Peace on Earth, right.
Remember last year when Centocor donated $10,000 to the CCFA for every touchdown scored by David Garrard? Well, they're doing it again this year. Here is a quote from the press release:
Centocor Ortho Biotech Inc. announced today that the In the Zone for Crohn's
program with David Garrard, quarterback for the Jacksonville
Jaguars((R))(1) will continue this football season to raise awareness
and provide funding for Crohn's disease research, education and
support. Building on the success of last year's program, which raised
$170,000 for the Crohn's & Colitis Foundation of America (CCFA),
Centocor Ortho Biotech will again make a donation of $10,000 to the
CCFA for each touchdown Garrard scores, passing or rushing, during the
2009 NFL season.
I had a nice email telling me about this year's fundraising from Craig, at Johnson and Johnson, which is the parent company of Centocor. Nice guy. I know that a lot of people do get relief from their product Remicade. And its great of them to fund research to help cure Crohn's. I mean really, once we have a cure (hope, hope) they won't be selling their product as much and I think that would be a good thing.
I love me some David Garrard. He's so
cute, and a really nice role model. It's refreshing to see a football
star who claims his mom as an influence and doesn't make headlines for shooting
himself in the butt or beating up dogs, if you know what I mean. Hope
Jacksonville does a bit better this year.
Did you read how I actually went on ebay and bought a signed rookie card?
Yeah, I am silly. Here is the scoreboard so far, no money yet. Let's all root for Jacksonville! Especially when David throws the touchdowns.
NASCAR Drive Scott Speed is an Ulcerative Colitis sufferer, and is using his fame to help raise funds for the Crohn's and Colitis Foundation of America (CCFA.)
First of all, could this guy have a better name for his job? I think not! Second of all, this sounds like a really fun contest. I would live to watch the race from the sidelines. I wonder what effect Red Bull has on a UC digestive system?
The Take Steps Fast and Furious
Fundraising Contest offers an automatic entry to win two tickets to the NASCAR Sprint Cup Series race at Texas
Motor Speedway on Sunday, November 8th for every $100 raised through the
Foundation's national walk program, Take Steps through August 31.
The winner will watch the race action from inside the Red
Bull Energy Station, a VIP hospitality setup, and meet NASCAR driver of the number 82 Red Bull
Toyota, and CCFA spokesperson, Scott Speed. You can read more about the contest
and those interested in the contest can visit www.cctakesteps.org.
Facebook users - click this link to join the "Virtual March on the Hill." http://apps.facebook.com/supportccfa Shire will donate $1 per footstep
to CCFA for research, education and support initiatives for each of the
first 30,000 steps taken.
In the same way that David Garrard made $5,000 a touchdown for Crohn's disease this past football season, Edmonton Oilers hockey player Fernando Pisani will be making $5,000 per goal in the NHL season.
Drug manufacturer Centocor will donate the money to the CCFA for every goal scored by Pisani, who took time off from the game in 2007 due to Crohn's.
David Garrard and Centocor have donated $170,000 to the CCFA towards Crohn's Disease Research.
Congratulations to David for a good season with the Jacksonville Jaguars. They didn't make the playoffs this year, but played well! David is known for his leadership on the field, as well as his willingness to be a spokesperson for Crohn's disease off the field. Since we need more awareness of this disease, I really appreciate how he is willing to speak out. He is also an inspiration to me personally. When I am not feeling so well I think of how physical the job of Quarterback is. If he can do it - I feel like I can too. (Well, not really play football, but I can administer the heck out of a computer network, right?)
One of the best parts about writing the Crohn's Disease Relief blog is that I have received emails from people in the community. Today I am writing about a woman who is running a half marathon all for Fundraining for Crohn's Disease.
Julie Nemecek is training to run the ING Miami Half Maratho. In conjunction with Team Challenge she has a fundraising goal of $3600 all of which will go to the Crohn's and Colitis Foundation of America. (The people working tirelessly to rid the world of IBD)
Go Julie! Good luck with the fundraising and the running. If everyone reading this blog gave $25 thing of how fast Julie would exceed her goal.
Here is an excerpt from Julie's email to me:
I was hoping you might be able to offer some publicity on
your blog for a fund-raiser I'm conducting for the Crohn's and Colitis
Foundation of America. I'm running a half marathon in January with the
Team Challenge program with a final goal of raising $3600 for the CCFA.
My husband, as well as my stepmother and other members of both my
and my husband's family have Crohn's. So, this is a very personal cause
for me. Otherwise, there is no way I'd be running 13.1 miles. I had
never run more than a half-hour straight in my entire life before