Via Bill Robertson's Crohn's Disease, Ulcerative Colitis, & Inflammatory Bowel Disease pages I have come across some great resources for being an empowered patient. And believe me, we ALL need to be empowered patients - whether we are IBD sufferers or even just friends or family of IBD folks.
"Know Your Rights: A Handbook for Patients with Chronic Illness" - includes information on medical records, Social Security Disability Income, FMLA, etc. from Advocacy for Patients with Chronic Illness.
CDAI Calculator - You can use this index to track the activity level of your disease.
Crohn's Disease Activity Index (CDAI) calculator
